Partners of the Open Arms Educational Campaign
The Open Arms educational campaign would not be possible without the participation and commitment of the following advocacy organizations. Each of these organizations provides information and support to those affected by upper limb spasticity:
Founded in 1980, the Brain Injury Association of America (BIAA)* is the leading national organization serving and representing individuals, families and professionals who are touched by a life-altering, often significant, traumatic brain injury (TBI). Together with its network of more than 40 chartered state affiliates, as well as hundreds of local chapters and support groups across the country, the BIAA provides information, education and support to assist the 3.17 million Americans currently living with traumatic brain injury and their families.
*Brain Injury Association of America does not endorse any specific treatment for upper limb spasticity.
Founded in 1948, the National Spinal Cord Injury Association* is the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families.The mission of the National Spinal Cord Injury Association (NSCIA)* is to enable people with SCI/D to achieve their highest level of independence, health, and personal fulfillment by providing resources, services, and peer support.
*National Spinal Cord Injury Association does not endorse any specific treatment for upper limb spasticity.
Established in 1984, National Stroke Association* is the only national organization in the U.S. that focuses 100 percent of its efforts on stroke. National Stroke Association achieves its mission to lower the incidence and impact of stroke by developing compelling programs for stroke survivors and caregivers about how to best approach stroke recovery and its impact on lifestyle, calling for continued improvement in the quality of stroke patient care, and educating both healthcare professionals and the general public about stroke.
*National Stroke Association does not endorse any specific treatment for upper limb spasticity.
Founded over 60 years ago in 1949 by parents of children with cerebral palsy, today United Cerebral Palsy (UCP) is a leading service provider and advocate for people with disabilities. The UCP mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network. This includes approximately 100 local service providers reaching over 176,000 individuals daily in the U.S., Canada, Scotland and Australia.
*United Cerebral Palsy does not endorse any specific treatment for upper limb spasticity.
United Spinal Association* is a 501(c)(3) national disability rights and veterans service organization founded in 1946 that is dedicated to expanding opportunities to thousands of its members across the United States.
The mission of United Spinal Association is to enhance and improve the lives of Veterans and all Americans living with spinal cord injuries and disorders (SCI/D). The core belief of United Spinal is that despite living with a disability, a full, proactive and rewarding life is always possible.
*United Spinal Association does not endorse any specific treatment for upper limb spasticity.
"Open Arms: Raising Awareness for Upper Limb Spasticity" Educational Campaign Advocacy Partners. Sponsors of the Open Arms educational campaign do not endorse any specific treatment for upper limb spasticity
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BOTOX® is a prescription medicine that is injected into muscles and used to treat increased muscle stiffness in elbow, wrist, and finger muscles with upper limb spasticity in people 18 years and older.
It is not known whether BOTOX® is safe or effective for other types of muscle spasms.
BOTOX® may cause serious side effects that can be life threatening. Call your doctor or get medical help right away if you have any of these problems any time (hours to weeks) after injection of BOTOX®:
- Problems swallowing, speaking, or breathing, due to weakening of associated muscles, can be severe and result in loss of life. You are at the highest risk if these problems are pre-existing before injection. Swallowing problems may last for several months.
- Spread of toxin effects. The effect of botulinum toxin may affect areas away from the injection site and cause serious symptoms including: loss of strength and all-over muscle weakness, double vision, blurred vision and drooping eyelids, hoarseness or change or loss of voice (dysphonia), trouble saying words clearly (dysarthria), loss of bladder control, trouble breathing, trouble swallowing.
There has not been a confirmed serious case of spread of toxin effect away from the injection site when BOTOX® has been used at the recommended dose to treat severe underarm sweating, blepharospasm, or strabismus.
The dose of BOTOX® is not the same as, or comparable to, another botulinum toxin product.
Serious and or immediate allergic reactions have been reported. These reactions include itchy rash, swelling, and shortness of breath. Tell your doctor or get medical help right away if you experience any such symptoms, further injection of BOTOX® should be discontinued.
Do not take BOTOX® if you: are allergic to any of the ingredients in BOTOX® (see Medication Guide for ingredients); had an allergic reaction to any other botulinum toxin product such as Myobloc® or Dysport®; have a skin infection at the planned injection site.
Tell your doctor about all your muscle or nerve conditions such as amyotrophic lateral sclerosis [ALS or Lou Gehrig's disease], myasthenia gravis or Lambert-Eaton syndrome as you may be at increased risk of serious side effects including severe dysphagia (difficulty swallowing) and respiratory compromise (difficulty breathing) from typical doses of BOTOX®.
Tell your doctor about all your medical conditions, including if you have: plans to have surgery; had surgery on your face; weakness of forehead muscles, such as trouble raising your eyebrows; drooping eyelids; any other abnormal facial change; are pregnant or plan to become pregnant (It is not known if BOTOX® can harm your unborn baby); are breast-feeding or plan to breastfeed (It is not known if BOTOX® passes into breast milk).
Tell your doctor about all the medicines you take, including prescription and nonprescription medicines, vitamins and herbal products.
BOTOX® may cause loss of strength or general muscle weakness, or vision problems. If this happens, do not drive a car, operate machinery, or do other dangerous activities.
Other side effects of BOTOX® include: dry mouth, discomfort or pain at the injection site, tiredness, headache, neck pain, and eye problems: double vision, blurred vision, decreased eyesight, drooping eyelids, swelling of your eyelids, and dry eyes.
For more information refer to the Medication Guide or talk with your doctor.
You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.
Please see full Product Information, including Medication Guide for BOTOX®.